grief

When Words Are Too Much Work

Some days it’s a struggle to even reply to an email, much less start one.  Some days I look at the text message on my phone and wonder how long I can ignore it.

It’s not that I don’t want to talk.   It’s that using my words is too hard some days.  If you’ve never experienced it, you’re unlikely to understand it.

It’s not a cataclysmic event propelling me into a place of quiet. It can be old memories flooding back, creeping into corners I thought had been cleared out.

Small things, little things.  Mundane life, death, grief, panic, contentment.  The jumble, the tumble of emotions that any given day can wash on shore.

The death of a friend, who left behind a daughter close in age to the 17 year old me who buried her father.  The things that never quite get packed up at put away, no matter how many locks you turn and how many walls you build.

The upcoming holidays, which will be different from all previous ones.  In some good ways, in some ways that could be better.  The uncertainty of how it will feel.

Darker days, shorter days.  Cold and cloudy.  It fits my mood.

I want to retreat into my shell, except, I don’t.  I take breaks, and know that I”m lucky enough to have three best friends who understand, and let me hide for a bit.  But never for too long.  They always coax me back out into the sunlight.

They get it.  They get me.  And I need to thank them publicly for that.  For supporting me.  For picking me up when I fall down.  For lying down with me when I couldn’t get up.

For understanding when words are too much work.

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From One Fatherless Kid to Another

I had intended to write another in the series of Ava-isms, but I just couldn’t let the passing of someone so important simply go by with out any words at all.

By now, I’m sure everyone knows that Steve Jobs passed away yesterday, at the not very old at all age of 56.  So much has already been written in the few hours since his passing- about his work, his vision and how both of those things changed the world.  I learned of his death from a text message on my iPhone, the very device that has been the flagship of his company for the past 4 years.

And while I’m truly sad that someone with so much talent and drive and creativity is gone, what I am rarely seeing discussed, but what has been floating through my mind since last night is this:  The world lost a guiding light of technology, but four children lost their dad yesterday.

He was 56.  Much too young to leave your kids.  Only three years older than my own father who passed away 20 years ago.   I know how they are feeling.  Even when you know death is coming, still you can never really be prepared for it.  Especially when it is someone so close to you.

I know the uncertainty they must be feeling, facing life without their dad.  You can argue that they have just inherited an immense amount of money, and while that may be true, fortunes do not lessen the blow of death.  It does not replace a parent.

Money can’t buy you a dad to walk you down the isle when you get married.  Money can’t buy you a grandpa to hold his granddaughter for the first time.  Money can’t give you a father to turn to for comfort when your life crumbles around you.

I’m very sorry that those children will not have their dad around as they finish growing up and journey into adulthood.

I will think about them, and him, each night, as we use FaceTime to connect Ava with her parents when we’re away.  As I take photographs of my sweet girl, I hope, on their phones they carry pictures of their dad that will make them smile and bring them some small comfort in the days, weeks and months ahead.

 

The grief does get easier.  There will always be moments, sights, sounds, even smells that will bring you back to your childhood and make you sad for what you’ve missed, and what might have been.  Today is one such day for me.

 

So, rest in peace, Steve.  You definitely left your mark on this planet.  And if you run into my dad up there somewhere, tell him I miss him, I love him, but I’m ok.   And your kids will be too.

 

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Imagine

Imagine a world in which your children only were tucked into beds under your roof two weeks out of every month.

Imagine a world in which mornings did not always include a sweet sleepy face saying “Good morning Mommy”.

Imagine a world, in which your baby did, said and tried new things for the first time and you hear about it afterwards.

Imagine not being able to see or touch the soft hair of the person you gave birth to, because the court says it’s not your day.

Imagine walking out of a house, hearing your child screaming for you, sobbing, and having to just keep walking. Because your parenting time has ended for the week.

Imagine having to give up all your carefully laid plans on raising your girl, because now you only have control over her environment on pre-planned out days.

Imagine worrying that her parents living in two separate places and no longer functioning as a family will harm her in ways you can’t even envision yet.

Imagine you go days without physical touch of another human.

Unless you’ve been there. You cannot imagine. You cannot know the heartbreak. You cannot know the tears that are shed, the sobs that echo off walls. You cannot know the longing for the feel of her little hand tucked into mine. You cannot know the twisting of my heart as I smile for her, never letting her know my sadness.

When I say I cry, when I say I shed tears over something, don’t tell me I’m silly. Don’t trivialize my pain.

You don’t know my heart. You’ve no right to judge my heart.

Be grateful for your life. If it’s as good as you say, you don’t need to tear down my already battered emotions with your superiority.

Imagine that small words, tucked into sentences, have the power to hurt.

I hope all you ever have to do is imagine.

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New Normal

Last night I slept alone.

It was time.

Gone are the days of turning over at night, taking comfort in knowing there is someone there beside me.   Someone who would hold and protect me.  Someone with whom I could share my fear after a night mare, or to talk me down during a panic attack.

Truth be told that person hasn’t existed in a long time.  We’ve just been two people sharing a bed.  No true connection.

As much as I would like to turn back the clock, and have a do-over, I have to keep moving forward.  If I allow myself to keep looking back, it will paralyze me.  I can’t allow that to happen.

I spend my evenings alone, in quiet solitude.  Sometimes with the television, sometimes with my iPod or Blackberry and Twitter to keep my company.  Ava goes to bed early, leaving me with several hours to fill before it is my turn to fall into slumber.   This is my new normal.

Mornings are spent in silence.  Sitting beside someone who is at once familiar, and yet a stranger.  No words are spoken, not even good byes. The new normal.

In the weeks and months to come, there are going to be so many more changes that will usher in the beginning of a new era.  Papers will be filed.  Our home will be going on the market.  I will begin the process of finding somewhere new to live.

I am both terrified and oddly excited at the prospect.  Terrified to be doing it alone.  Nobody to help me make the hard decisions.    Terrified at the thought of weekends and nights without my daughter.  But excited to find a place that will be mine.   Excited to build a home for her, and for me, that will be warm, inviting and safe.

I hate that we are about to turn her world upside down.  Not just one new place, but two.  The days of having both her parents under the same roof, giving her reassurance when she is anxious or frightened, gone.   I don’t want her to have to come to terms with a new normal.   Life as she knows it is all about to change.

God, don’t let us fuck it up.

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Quicksand

Yesterday I lay on my bed, staring out the open window.  Outside there is a plum tree and tiny little birds were zipping in and out of it’s branches, chirping.  I wondered how many more times I would get to see their little show.

I spend a lot of time on this bed.  It’s one thing that will remain mine after this messy division is complete.  I am clinging hard to it.  It is concrete in a world of quicksand.   Crushing me as I sink deeper.  One minute something is  mine, the next I realize it is not.

The fridge I have taken for granted for almost 9 years.  Will I soon be dependent on a small one, part of a new apartment?  The wall of DVDs in the family room.  Will any of those remain in my possession?  The TV that I know is coming with me…what on earth am I going to set it on?  Do I keep the curtains or let them go with the house?  That freezer out in the garage…will I have to cram food into a tiny freezer above an even tinier fridge?

Eleven years of accumulating things.  Things acquired as part of building a life.  I was able to paint my walls.  I love my walls.  The colors were soothing to me.  I used to love coming home.  Now I dread it.  I hate it.  I feel as though I am simply living on borrowed time.  And indeed, I am.  Soon enough this house, this life that was lived within it’s walls will be nothing but a memory.

These may seem like silly things to think about.  And indeed, in the bigger picture, they are.  But they keep me from focusing on the harder things.  The things that send me into a spiral of tears and lead me to the floor of the bathroom at work.  The things that I know I will have to sort through, work on and get over.

Right now, I just want to lie on my bed and hope the quicksand doesn’t take me.

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Protected: Statistic

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365

365.  The number of days Maddie has been gone.

I think of her every day.  I have a picture on my desk at work, courtesy of the lovely Casey, of the balloon launch after Maddie’s funeral.   It’s a daily reminder to me of love, loss, and gratitude.

So much has happened in the last year.  My baby has become a toddler.  She walks, she runs, she climbs.  She talks, she whines, she cries.  Last night was one of the worst meltdowns I’ve ever seen her have.  Ever.  A year ago I might have thrown my hands up in desperation and simply walked away.  But because I know more patience now, I have more perspective now, I didn’t walk away.  I sat down with her.  Tried to hold her, comfort her, help her work through it.  It sucked for both of us, her because she’s frustrated and can’t communicate what she wants or needs,  frustrating for me because I want to help her, but don’t know how. But I thought of Heather and Maddie, and as much as I wanted to scream, instead I counted my blessings.  My girl is here for me to hold, snot, tears and all.

The last year brought about so many changes.  Heather has a beautiful new baby girl named Annabel.  She has the same sparkle in her eyes as Maddie.  She is as loved as Maddie.  Maybe more so because of Maddie.  It’s a terrible burden to carry.  That knowledge of losing a child.  There is such a difference between thinking about the idea of losing your child and actually having it happen.  Heather and Mike carry that burden daily.  They’ve created a foundation in her name, Friends of Maddie. Through this foundation, Maddie’s legacy lives on, helping other families who have lived through having a baby in a NICU.  Go there, now, and make a donation and make a difference.  Honor Maddie today by giving to a March of Dimes team created in her memory.

The last year brought many new friends into my life.  Good friends.  Best friends.  Something I hadn’t had in many years.  Something I needed and didn’t really know how much.  Had I not jumped in with both feet after Maddie’s passing, I might not have those friends.  But something about her pulled me in.  Made me want to help.  To care.  To Love.

The last year has been hard on so many people.  2009 is not a year most of us will remember fondly.  It was a year of love.  It was a year of loss.

It’s crazy that one little girl has had such a huge impact on a stranger’s life. While I’m sad beyond belief that Maddie has flown away to be with the angels, I’m so glad that I got to “know” her – through Heather’s blog, and the hundreds of pictures and videos that Heather and Mike have been generous enough to share.

Today I wear purple.  As soon as the rain stops here we are going to be re-doing our backyard.  A portion of that will be a purple rock garden.  Maddie’s Garden.  Ava and I will lovingly tend it together, hopefully for years to come.  We’ll wear our Maddie shirts.  We will grieve.  We will love.

Heather and Mike, I wrap my virtual arms around you today.  I send you love and the hope for peace.  Maddie will never be forgotten.

Photo lovingly swiped from Heather’s blog.

Please don’t sue me, Heather.  :)

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All in the Details – For Layla Grace

My circle of friends on twitter is in pain today. For months we’ve all been watching, waiting and praying that a little girl with cancer would beat the odds. For about the last month, we knew she was going to lose her battle. Today, a sweet little girl, not much older than my Ava has flown away to be with angels.

I chose not to follow updates from her parents. Too fresh on the heels of Maddie’s passing and dealing with Ava’s own issues, I felt it was too much for me to handle. I come off as a real asshole a lot of the time, but since having a child, I’m a big old softie when it comes to kids. I still tear up thinking about Maddie. I don’t know if that will ever change.

Many of my friends do follow Layla Grace. Through their updates, I was seeing the down hill progression anyway. Some days I would close Twitter altogether, shut down Facebook and log off. Too much. Too much pain.

Today in the course of discussing our shared grief, my friend Becky asked this question:

Beck Quote

I started thinking about that. Why did I have to excuse myself to the restroom and lay my head on the cool wall while I cried and sobbed after hearing Layla had passed away? Why did Maddie’s passing hit me so hard? It’s not just that as a mother, I can empathize with the fear and heartache. But with blogs and Twitter, we are afforded a glimpse into the daily lives of people in a way that we’ve never experienced before. We see the big things, jobs, houses, marriages, divorces, birth, and death. But we see all the little things in between. Things that normally we would only know about someone if we knew them in real life.

We hear about how a day is spent. We read about likes and dislikes of minute things. We learn about favorite colors, hated foods. What makes someone smile. The kind of music enjoyed. The details. The details that make us all unique. The details that, when all put together, form a picture of a person that allows us to be drawn in. The details that make us feel the person we are reading about is familiar. We begin to care. We even begin to love.

So truly, is it any wonder then, that as a community we grieve so hard for people we never actually laid eyes on, never touched, never spoken to. We don’t need those things to form a bond or develop emotions.

We will all remember and grieve in our own ways. For me, writing is what I do. I examine, I process, I think.

Today I am thinking about Layla Grace and her family. I wish for peace and comfort. I pray that this is the last time I have to wish for that.

Soar high and free, Layla. Your pain and suffering on this earth are at an end. May the sun always shine on your face and you feel nothing but love and joy in the next life.

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What Will Always Be Missing

Today is just another Tuesday.  Except it is not just another Tuesday.  Today marks the 20th time another year has rolled around without my dad.  Another year that I mourn for what might have been.  What should have been.

I don’t grieve in the same way I did 20 years ago.  Time has softened my emotions.  Grief that once was sharp and raw has now become dull and scarred over.  Events, smells and sounds can bring back the memories, but they no longer have the power to cripple me as they once did.

Mostly now, I look at Ava and regret that my dad is not around to see this wonderful human being that has his genes running through her veins.  Sometimes she makes a face, and for a second, I see a flash of my dad.  What I would give to see Ava sitting in his lap, eyes wide with excitement as my father told her one of his famous stories.  I wish I could see her giggling with delight as he tickled her the way he once tickled me, as we curled up on our sofa together.  I will never get to relive my childhood with my father through Ava.  My past and my present can never collide.

My biggest regret, the source of most of my sorrow, is that to Ava, my dad will never be more than a concept, an abstract idea.  A faded image in photographs.  She’ll never hear the sound of his voice or know the warmth of his hug.  No matter how much I talk about him, or show her pictures from the past, he will never be as real to her as he is to me.  He won’t be any more real to her than my own maternal grandfather is to me.

My mother’s father died long before I was born.  Although she spoke of him often, he remained a black and white image in a picture to me my entire life.  In his pictures he looked stern and gruff.  But my mother called him “Daddy” and told tales of him playing with her and her siblings.  She spoke about how much he changed after the war.  The war being WWII, and my grandfather having been drafted into Hitler’s army of old men and children toward the end.  In my head I see flickering black and white images, the grainy film of a news reel.  That is all of my grandfather I have.  I never once met him, or even spoke to him.

It pains me that my dad missed out on being a grandfather.  I hate the fact that Ava’s family history will be told through me, missing a generation of information that my father would have provided.  There is a piece of my family’s fabric that is missing.  Today I remember.  I mourn.  Tomorrow, I begin weaving another portion.

I miss you, Daddy.

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Twenty Years On, Part 3

I remember it was gray.  It was January, after all.  I don’t remember if it was cold.  I remember the minister speaking in generalities about my dad.  He didn’t really know my dad all that well, seeing as how my dad was not a churchgoer.  He simply hadn’t been able.

The one memory that stands out clearly from the day we buried my father was that I prayed hard to just get through the day without breaking down.  So many eyes were upon my mother and me.  Everyone looking at us, whispering in hushed tones.

I remember scattered fragments of the days between when he passed and the day of the funeral.  Buying dresses to wear.  Picking out his suit, fending off a meddling grandmother and aunt who wanted to do things their way.  Sitting in the funeral home, selecting a casket and flowers for the top.  Always my mother looking at me and asking “What do you think?”  What do I think?  I think I’m 16 years old, I shouldn’t be doing this.

But I was.  I was making arrangements to bury my father.  Making phone calls.  Taking phone calls.  One in particular stands out.

My father in his last few years had begun research into his father’s side of the family.  A side we knew almost next to nothing about.   To his delight, he discovered we had cousins in Texas, and one of them was doing a genealogy trace as well.  They spoke on the phone on numerous occasions and the Texas contingent even traveled to Mississippi to meet my dad.  I remember my cousin calling a few days before the funeral asking to speak to my dad.  I had to tell her he had passed away.  She was so shocked she hung up on me.  She called back a few minutes later, apologized for hanging up on me, and said they were on the way here.  They must have broken many speed limits along the way, but they made it to Mississippi in time for the funeral.

So many people with that same look in their eyes.  Sad.  Unsure of what to say to us.  Classmates, whose parents pushed them to say something, mumbling “Sorry”.  So many “I’m sorrys”.  Too many.  What do you say to that?  “Thank you?”  I hate that part of loss.  People tip-toeing around you, you feeling like every word, action, expression is being watched, judged.  If you dare laugh at something, you’re not appropriately grieving.  If you cry too much, you’re overreacting.

After the funeral we all gathered at my grandmother’s house.  She was in her element, holding court.  You had to know my grandmother to really understand. Honestly, that’s whole separate post.  But needless to say, she thrived on drama, and the bigger, the better.

One of my cousins came over to fix one my grandmother’s space heaters.  Despite the fact that he and his wife and son lived next to us for five years, and my parents helped him out on numerous occasions, he did not come to the funeral. He had nothing to say, except that he could not understand why we were all so upset, since we knew this day was coming.  I was, and still am, speechless that someone could utter words so unfeeling.  I have not spoken to him since that day. I don’t know that I ever will.

Life for me, of course, marched on.  I went back to school, feeling more shunned and out of place than ever.  Now, not only was I the poor fat kid.  I was the poor fat kid whose dad died.

Once my dad passed away, apparently so did any obligation his family felt towards my mother and me.  We were isolated, with the exception of two of my dad’s sisters, both of whom lived out of town.

I graduated high school the following year, with only my mother and a great uncle in the audience to watch.  The first of so many events to happen with out my dad present.

I have a good life now.  I’m in my 30s.  I’m married and I finally have a family of my own, with the birth of Ava last June.  I sometimes wonder if I would have the life I have now, had he lived.   I know in my heart I wouldn’t.  I would not have made the stupid choices I made at age 19, getting married to someone old enough to be my father.  I wouldn’t have ended up divorced 8 months later.  I wouldn’t have charged headlong into yet another relationship with someone once again 20 + years my senior only to end up alone again.  I wouldn’t have purchased that computer that led me to a fan group where I met the man I am married to today.  I probably wouldn’t have had the guts to pick up and move across country.  I might have had kids, but I wouldn’t have my Avacakes.

I know my life thus far is what it is,  in large part to my dad’s passing.  The choices I have made, the grief I carry inside me shaped who I was, who I am, and who I will be.

It’s been almost 20 years now.  Dad has been gone longer than I knew him.  The grief has faded.  I no longer think about it every day.  The big events bring to mind the wish that he was still here to be a part of my life in a tangible way.  I know it’s ok to say goodbye.  It’s ok to let go.  And I will do so.  Every day for the rest of my life.

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